Personal Health Data Ownership: November 2024 GLSA Networking Event Recap
Personal health data ownership is becoming an increasingly important topic in clinical research and life sciences. On November 20, 2024, the Global Life Sciences Alliance (GLSA) hosted its monthly virtual networking event, bringing together professionals to discuss data privacy, patient empowerment, and the evolving role of personal health data in research.
Open House Format for Personal Health Data Discussions
As with all GLSA networking events, the session followed an open-house format. Attendees were free to join and leave as their schedules allowed. To encourage continued collaboration beyond the event, participants were invited to share their LinkedIn profiles in the chat. This approach has become a hallmark of GLSA events and continues to strengthen professional connections across the network.
Industry News and Outlook for Clinical Research
The evening began with an open discussion on industry news, conference highlights, and emerging trends in clinical research. Participants shared observations of increased activity across the industry, sparking cautious optimism for a stronger business climate in 2025. These conversations set the tone for a forward-looking and thoughtful session.
Featured Topic: Personal Health Data Ownership in Research
The featured presentation was delivered by Brittany Gottschalk, founder of Geno.Me, a Data as a Service (DaaS) network designed to empower patients to securely share their health information with researchers in exchange for compensation.
Brittany’s presentation explored how patient-controlled data models can reshape research by improving access to real-world data while respecting privacy and individual choice. Her innovative approach and professional background sparked a robust discussion on the opportunities, barriers, and ethical considerations surrounding personal health data ownership.
Why Personal Health Data Ownership Matters
The concept of owning personal health data has become a central—and often controversial—topic within the life sciences industry. As technology makes it increasingly possible for individuals to control and monetize their own health information, important questions arise around privacy, ethics, accessibility, and commercialization.
These issues touch on regulatory frameworks, patient rights, and the future of clinical research. As a result, the discussion generated strong engagement, with attendees sharing diverse perspectives, challenging traditional models, and exploring responsible ways to integrate personal health data into the research ecosystem.
Due to the depth of the conversation, breakout sessions were skipped, and the event concluded at 7:45 PM ET. Attendees expressed appreciation for the opportunity to explore such a timely and impactful topic in depth.
Event Attendees and Personal Health Data Contributors
(First-time attendees are in bold)
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Brittany Gottschalk – Geno.Me (Featured Presenter)
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Jeff Smith – Innovation Network
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Michael Young – biomedwoRx
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Freddy Byrth – Proxima Development Advisory Services
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Mike Strand – ImmunoRestoration
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Neil Banerjee – QMS Integrity
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Ryan Williamson – Dirac Delta Consulting & 910 Advisors
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Mike Burrows – Burrows Life Science Associates
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Martin Cleary – eClinical Technology Consultant
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Christine von Raesfeld – People with Empathy
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Lisa Thomas – Global Recruiters of Chattanooga
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Christine Martin – Pharmacovigilance Consultant
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Marlyn Brookins – Insightful Intellect
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Rob Ott – Ott Management Solutions
GLSA Team
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Timmina Williams
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Aspen Buck
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Alex Hoppe
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Chris Matheus
Stay Connected
GLSA hosts monthly networking events through zoom, typically on the third Wednesday of each month at 6:00 PM ET. These sessions are an open house for professionals to connect, share insights, and collaborate. Join us in December for a special holiday-themed networking event.
To stay updated on future events, make sure to sign up here:
Sign-Up Link
You can also join the Women of Life Sciences LinkedIn group:
Women of Life Sciences LinkedIn Group
Our Mission
The Global Life Sciences Alliance is dedicated to connecting people and companies within the clinical research industry. With a network of over 100 clinical research service providers, we are here to help solve challenges and foster collaboration. When you face an issue or have a need, don’t hesitate to reach out—helping you is what drives us.
We look forward to seeing you at our next event and continuing to make an impact together!
About GLSA
Global Life Sciences Alliance (GLSA) connects biotechs, pharma, CROs, and clinical research sites with the right experts, advisors, and solutions to accelerate development and reduce risk. With a network of more than 200 trusted partners spanning pre-clinical and clinical research, GLSA offers flexible, cost-effective access to specialized expertise and services that support early-stage biotechs, mid-size pharma, and global pharmaceutical companies.
When you need trusted, global resources to accelerate your research, GLSA helps you scale smarter and move you forward with confidence.
To learn how GLSA can support your organization, connect with Denise McNerney or Chris Matheus for a conversation about your goals and challenges.